Stories
related to Aplastic Anemia
Bhagwati Patel
Bhagwati
Patel was suffering from Aplastic Anemia. She was around
52 yrs old. She was diagnosed for AA in Sept'2000. She took
ALG with Cyclosporine in Bombay hospital in October'2000.
But there is no response of the medicine. She has to take
platelets every week and blood every month. Later on, she
was taking platelets every third day. She passed away in
June 2002.
My
family and I had great problem searching people to donate
platelets. People were scared for donating platelets. We really
want to thanks Amit Joshi, Raju Asher, Dipesh Doshi, Rajesh
Chitali, Sandeep Parab, Abhijeet, and Malini Pandhya for helping
my family by always being ready to donate platelets and blood
whenever we needed.
We
are really thankful to all the people who tried helping us;
even their health didn’t permit them to go for donation.
We
really want to spread awareness regarding Aplastic Anemia,
Platelets and Bone marrow transplant. We want to support other
patients and their families in whichever way we can. We will
be more than happy to help them.
My
family and me (Bombay)
Mr.
Rana
Hi,
I am Mr. Rana. I have Aplastic anemia. It was diagnosed
in January 2001. I didn't have any idea about this disease
before it was diagnosed. I had some problem of exhaustion
and breathlessness but that we don't mind (considering our
self strong...(:
). So I had gone for various doctors advise because my HLA
was not matching. I couldn’t go for bone Marrow. So
after consulting some doctor I went for ATG at Bhatia hospital
Mumbai. On paper everything was right (doctor and hospital)
but it was nightmare for me. I don't advise anybody to go
for the same combination. Because my condition was deteriorating,
I was moved to a new doctor in Ahemdabad. This gentleman is
an excellent doctor as well as human being. I found him the
best one in my whole experience. He gave me supporting treatment.
He was strict in maintaining patient's condition. According
to him patient must be kept above some minimum count level.
That worked for me and I started improving. I am almost back
to the normal life nowadays .I restart my work and enjoying
my life. What I believe is apart from medication and other
thing patient’s will does matter. So one should enjoy
every
condition. (:
Thanks.
Mr.
Rana (Ahemdabad)
[top of page]
|
